Thursday, May 9, 2024

A Timeline



 Oct 2003: “Look at that cord.” Younger barrels into this world straight into the NICU. We don’t know if his precipitous delivery inflicted long-lasting damage.

2003-2006: Identified as a sibling of an autistic child. Becomes a study subject. Is in and out of early intervention because he unqualified himself only to qualify again two months later.

Oct 2006: conditional autism diagnosis to continue services through the intermediate unit.

2007: Daycare teacher takes time off work to essentially shame the powers that be to increase meager services—and succeeds in helping the familial unit get a team together. Younger thrives.

2009: K-12; into the breach

Time passes. All kinds of stuff happens, good, bad, ugly, indifferent. The ongoing study reveals a spiky cognitive profile. His processing speed gets in the way of peer interaction. Nevertheless, he persists.

2014: Attends his first IEP meeting as a team member. Calls out another member for not recognizing his membership.

2019: Runs his first IEP meeting as team leader. Calls out another team member for questionable behavior.

2020-21:  COVD reveals an academic rock star. Up until this point, sitting in a desk yielded him average grades; distance learning allowed him to wander through the house with his laptop, and further unburdened by sensory overload that comes with peopling, discovers he can not only learn, he can excel. Makes honor roll for the first time. (And is one of like 5 people who came out of COVD better off)

2022: Walks with his class. Begins college and Vo-tech for his super senior years.

2024: Earns his associates and collects his diploma. And is bound for Temple.



Saturday, May 4, 2024

I am forgetting everything

 Wish it were deliberate, but I am not that lucky.

I can write a book about mom, but another time.

The sun sets on our time in the school district. In September, I will have two college juniors. I’m looking in the mirror and the years are catching up. Trying to make my eyes and teeth last longer, but genetics push back hard.

Elder went to his first life celebration solo today; I dropped him off and wish I got a picture of him greeting and hugging people on his way in. He even got up and said a few words about his friend. He reports being over dressed, but better over than under.

Younger graduates community college in less than two weeks and is looking forward to what’s next.

I applied for a doctoral program, and we’ll see where that goes.

I’m paddling, spent two hours on the river today, and although it was cloudy and chilly, I needed the mindfulness of  paddling; nothing exists outside the boat as long as I am in it.

Hopeful. Hope is all there is.